- Women with Primary Ovarian Insufficiency (POI) have ovaries that stopped working normally
before they turned 40. This usually causes infertility, which challenges many women with the
condition to ask themselves, Why me? This kind of question is about our human existence, or
what some call an existential view of life. Researchers have learned that spirituality and
finding existential purpose help women with POI. So does meeting other women with the same
problem. Researchers want to find new ways to help women with POI cope with it.
- To develop and test a practice for women with POI called Deep Reading.
- Women enrolled in another POI protocol, who can read and speak English.
- Participants will first have an individual visit or phone call. They will describe
spiritual or existential practices they have done. They will also answer questions about
spiritual and existential health and daily functioning.
- They will join a group for 6 weekly sessions. Each session will be 60 90 minutes.
- In each group session, a coordinator will teach participants about Deep Reading. They
will read a piece of up to 1000 words. They will think about the piece and then talk
about it with the group.
- Between sessions, participants will practice Deep Reading at least once for 15 20
minutes on their own. They will check in once with another group member. They will keep
a log of these activities.
- After session 3, participants will answer questions online about wellbeing and
- At session 6, participants will answer questions online about wellbeing. They will
answer questions about their overall experience.
- One and 3 months after the sessions end, participants will again complete online
wellbeing questionnaires and report on their continued practice of Deep Reading.
It is well documented in the literature that women with Primary Ovarian Insufficiency find
spirituality a valuable resource for coping with the existential dimension of the diagnosis.
This is an exploratory pilot study which examines reading as a contemplative practice to
assist these women as they attempt to come to terms with the life altering aspects of living
with the diagnosis. In this intervention, that we call Deep Reading, up to 15 participants
will engage in six weekly sessions approximately sixty to ninety minutes in length in which
they will receive instruction on aspects of Deep Reading, practice Deep Reading and process
the experience. Between group sessions participants will be asked to practice Deep Reading on
their own and be paired for mutual support and encouragement. For convenience participants
will be recruited from among those already enrolled in NICHD Protocol, Ovarian Follicle
Function in Patients with Primary Ovarian Insufficiency (91-CH-0127). We will use the
FACIT-Sp and satisfaction questionnaires to measure participant response and feasibility for
- INCLUSION CRITERIA:
To be eligible for this research study, subjects must:
- have previously enrolled in NICHD study 91-CH-0127, Ovarian Follicle Function in
Patients with Primary Ovarian Insufficiency
- agree to practice Deep Reading at least once each week outside of group sessions
- agree to respect the privacy and confidentiality of other participants
The following will be excluding from participating in the study:
- those unable to give consent
- those unwilling to participate in 6, 90 minute group sessions