Philadelphia, Pennsylvania 19131


The Cancer Support Community's (CSC) Research and Training Institute has created the Cancer Experience Registry: An Online Initiative to Change the Future of Cancer Care to identify and understand the emotional and social needs of cancer survivors. Armed with this knowledge, the investigators will raise awareness about and help develop programs to address the needs of cancer survivors. Anyone who has ever received a cancer diagnosis, whether recently diagnosed, in treatment, or years post-treatment can participate. Interested cancer survivors can register at

Study summary:

The online registry will allow CSC's Research and Training Institute to report annually on trends and changes in the emotional health status of cancer survivors. Such data collection and tracking will serve as the basis for increasing public awareness and in developing effective programs to address the often misunderstood and under served needs of cancer survivors. The registry will fill a critical gap by providing a mechanism to learn directly from cancer survivors what issues they face. The Cancer Support Community's Research and Training Institute will disseminate an annual report to highlight the findings of the registry. The report will be available to the cancer community at large.


Inclusion Criteria: - Having received a cancer diagnosis or caring for someone with cancer Exclusion Criteria: - None



Primary Contact:

Principal Investigator
Joanne Buzaglo, PhD
Cancer Support Community

Amna Baig, MPH
Phone: 2672953002

Backup Contact:

Alyse Ameer
Phone: 2672953003

Location Contact:

Philadelphia, Pennsylvania 19131
United States

Joanne Buzaglo, PhD
Phone: 267-295-3001

Site Status: Recruiting

Data Source:

Date Processed: November 23, 2017

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