We are inviting you to participate in a study of how people who have had genetic counseling
for breast/ovarian cancer risk feel about certain reproductive technologies, preimplantation
genetic diagnosis (PGD) and prenatal genetic diagnosis (PND), that may reduce the chances of
passing increased risk onto one's children. We would also like feedback from patients who
have been to our clinic in the past on the best ways to talk about PGD and PND during
genetic counseling sessions. We are seeking both the opinions of people who are interested
in these technologies and those who are not. It does not matter whether you have heard of
PGD or PND before - you can still participate. Your past experience with genetic counseling
is valuable to us in deciding how to communicate this information during sessions.
- Females and males who are carriers of deleterious mutations in the genes BRCA1 or
- Over age 18 and:
1. For women, less than 43
2. For men, less than 50.
- Received genetic testing and counseling for BRCA.
- Fluent in English.
- Patients who are currently under treatment (chemotherapy, radiation)
- Individuals who refuse to discuss reproductive issues.
- Unable to give informed consent due to physical, cognitive, or psychiatric disability