Expired Study
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Bethlehem, Pennsylvania 18015


Purpose:

This qualitative interview-based study will investigate the impact that living with congenital adrenal hyperplasia has for women in the following areas: health-related quality of life (HRQL), psychological health, and health-seeking behaviors.


Study summary:

Congenital Adrenal Hyperplasia is a chronic-illness requiring life-long treatment and is caused by an inherited enzyme deficiency that leads to an overproduction of hormones produced by the adrenal glands, which in turn, masculinizes the female genitalia before birth. While the mechanisms by which CAH influences physiological development are understood, the impact of this hormonal elevation on health-related quality of life (HRQL), psychological health, and health-seeking behaviors is less clear. This study is guided by three research questions: (1) how does CAH influence HRQL domains (physical, functional, emotional and interpersonally), (2) how does CAH influence the mental health of women diagnosed with CAH, and (3) how does CAH influence decisions to seek help from a counselor? Semi-structured qualitative interviews will be conducted with women with CAH. Interviews will be analyzed through the Consensual Qualitative Research (CQR) methodology.


Criteria:

Inclusion Criteria: - 46XX, Females - Diagnosed by a physician with CAH (either simple-virilizing or salt-losing types) - Willing to complete a brief demographic questionnaire and participate in an hour long telephone interview Exclusion Criteria: - Non-classical or late-onset CAH


NCT ID:

NCT00559078


Primary Contact:

Study Director
Matthew A Malouf, BA
Lehigh University Counseling Psychology


Backup Contact:

N/A


Location Contact:

Bethlehem, Pennsylvania 18015
United States



There is no listed contact information for this specific location.

Site Status: N/A


Data Source: ClinicalTrials.gov

Date Processed: August 20, 2017

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